The availability of Vosoritide, a medication used for treatment of achondroplasia among children patients, will be widened following an initiative by the Georgian Government, the Ministry of Health said on Wednesday.
The issue was discussed earlier today during a meeting of the Coordinating Council for Rare Diseases, where Health Minister Mikheil Sarjveladze announced a plan to enable patients to receive Vosoritide “as close to their homes as possible” at venues providing outpatient services.
Sarjveladze added the initiative was launched in coordination with the Government to “ensure the safety of patients and their interests”.
The Ministry said the medication would be available throughout Georgia, with individuals intending to take it abroad would need to do so under the supervision of “qualified medical personnel”.
The meeting of the Council also involved parents of children with the syndrome and deputy health ministers Tamar Gabunia and Irine Tsakadze.
Vosoritide has been available in Georgia since November 2023 following requests by parents of children diagnosed with the illness for state efforts to introduce the drug to the country.
